I wish I was more prepared for
what I went through. I've never heard of HELLP syndrome until I was
diagnosed with it. I had no idea what was going on with me, but it
truly was a learning experience, and it certainly made me appreciate my
life a lot more since my doctor nearly lost both my daughter and me.
Heather's
Story
Hello, My name is Heather Robar, and I experienced
HELLP Syndrome with my fourth pregnancy.
My daughter, Ashlenne Cyerra, came into this
world via emergency ceserean section at 33 weeks. She was 3 pounds, 2 ounces when born and spent 1 month
and 3 days inside the neonatal unit. She had a lot of trouble maintaining
her own body temperature, which required her to stay inside of an isolette
most of the time. She also required oxygen, phototherapy for
her jaundice, and to this day, still suffers from severe respiratory problems.
My story is a little different, though, since
I've had three previous pregnancies without much complication. However,
at 28 weeks, I started bloating severely...to the point where I honestly
couldn't even wear shoes unless they were sandles with the velcro at the
top.
At 30 weeks, I cut the top straps in order
to walk without my feet turning purple. My face was a purple blotchy
color, and I had trouble with blurry vision. I brought these factors
to my doctor's attention, and he attributed it to the heat since it was
May. I figured he was probably right, so even though I continued
having the symptoms, I felt his reasoning for the swelling was justified.
At 33 weeks, on a Thursday, I went for my usual
checkup....with a black eye. My husband threw a bottle of shampoo
over the shower curtain rod for me one morning , and it accidently hit my face. It turned
my entire right side of my face from my eye to my nose completely black.
Obviously, my doctor wanted to know what happened, and we couldn't figure
out why I bruised this badly.
3 days later, I was going to get my answer.
I woke up on Sunday morning feeling miserable....face
purple, bloated more than usual, one astronomical headache, and a pain
that I never experienced before in the upper part of my abdamen.
The pain got so severe that I just couldn't sit up, lie down, nothing....I
knew something was severely wrong.
As luck would have it, one of my good friends
came up to visit me, and she immediately drove me to the ER.
At first, they thought it was my gall bladder, because I couldn't stop
vomiting. The pain accompanying it was tremendous. I had a
stress test, and it appeared that my baby was suffering from fetal stress
as well. My family doctor was on call, and my husband came to see
what was going on.
My doctor explained that I had a condition
called HELLP syndrome...I had virtually no blood platelets left, which
was a major concern since I would need a c-section. It also explained
why I bruised so easily. My liver was distended, and my blood pressure
was extremely high. I was rushed to the hospital an hour and a half
away from where I live.
At first, they tried to have me deliver vaginally,
but I was losing a lot of blood. It got so bad that I was bleeding
around my mouth as well. 4 o'clock that morning, they delivered my
daughter. I woke up on SICU with a tube in my mouth and unable to
move. I remained on that unit for almost a week before they moved
me to maturnity ward. I had multiple blood transfusions, and 16 IV's in my hands
and arms. I was on morphine for the pain.
I look at my 3 year old daughter and realize
everything she's been through. This all happened on May 25,1998.
My husband, 3 kids, and myself travelled almost 2 hours every weekend and during the week to visit
Ashlenne in neonatal, which was pressing, because I was still recovering,
and my husband was missing a lot of work.
Thank you for having a website like this to
tell of the events of HELLP syndrome.
Looking for more information?Go
to....
This site is not intended to replace your OB, Dr.
or medical care.
If you are looking for medical care please consult your
physician.
The information provided on these pages are not intended
to make a
diagnosis of a particular problem nor provide a cure.
Your health and the the health of your baby should be
overseen
by a qualified professional