I am very thankful for everything
the doctors did, but if they had known what HELLP was I am not sure that
it wouldn't have been so bad. I am a freak at our University hospital.
The university of Pittsburgh is a great hospital but they had never seen
anyone with HELLP Syndrome before.
I developed Hellp Syndrome with my 3rd child.
I had a pretty normal pregnancy. At 33 weeks I began retaining water.
I mentioned it to my Dr., but they just blew it off as another complaint
of a miserable pregnant lady. I was 36 weeks and 6 days when I developed
what I thought was gas pain. I had alot throughout this pregnancy
and just thought it was more. I tolerated the pain for almost 24
hrs. I called my Dr. in agony and she said come to the ER to be checked
out. On the way to the hospital I developed a headache like I have
By the time I got in the ER and upstairs was
about 15 minutes. They took my BP it had risen to 210/180.
They decided to do an emergency c-section. Didn't even have time
to tell my husband what was happening. When I woke I could not see right. I
had extreme blurred vision. They monitored me in the labor and delivery
area for a day, then moved me to the recovery side for the next two days.
My condition never got better. They were treating me with the magnesium
sulfate for preeclampsia. I went into renal failure. They decided
to transfer me to a downtown hospital which specialized in women and babies. At this time my family had been told it didn't
look to good. The hospital didn't want to keep me due to I had already
had the baby. I was then transferred back and forth to two other
hospitals (which ever had room in the ICU). I then started to have
seizures. I was put on Dilantan but they had no idea what was causing
them. I had a kidney specialist who suggested a brain problem. My liver count
went completely out of order. My Alt went as high as 2808 and my
AST went to 1784. My body would not release toxins. I was intubated
for 3 days.
On the Monday before I delivered I weighed
167 at my dr. appt. I delivered on Thursday night. On Sunday
I weighed 182. I had 2 platelet replacement treatments for my blood.
On Tuesday the doctors told my husband to call in my family. At this
time they told him I would not make it. An hour later the professor of neurosurgery
tapped him on the shoulder in the waiting room and said there were two
things they could try to help. My MRI showed my cerebellum had swollen
so bad it was pressing against my brain stem. This was causing my
seizures and had a big part in the renal failure. They drilled
a hole in my head to relieve the pressure in my head. A catheter
was inserted at 4:00 in the afternoon.
After the drain was in and flowing, they say
I was asking for a popcycle at 2:00 am. What a difference
10 hours can make. From there I was kept in ICU for 3 more days
with the drain in my head. I asked to be weighed. I then weighed
150. I had lost 32 pounds in 4 days, all fluid that my body would
not release. My little boy was born at 3 lbs. 8 oz. 17
inches long, and pretty healthy just skinny. He just turned 3 months
old and is just about 10 lbs. now. I have had a time trying to fix
my liver. I had so many blood test and my liver function tests would
just keep rising. I have a liver specialist who did a liver biopsy,
ct scan and an ultrasound. My results are in for the biopsy which
he said my liver was hit with trauma and has a mild case of necrosis. It is showing signs
of rejuvenating it's self. My brain specialist had taken me off dilantan
in fear that's what was causing my liver functions to be elevated.
But my EEG still showed activity, no seizures but activity. They
said I had massive brain swelling and activity is normal. It could
take 6 months to a year for it to settle down. I also just had surgery on my throat.
From being intubated I had a granduloma growing on my vocal cord.
It will hopefully not come back.
I hope my story can help someone. It
is nice not to be alone. Thanks for letting me share my story. Sincerely, Cherie Mazutis
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